I became hysterical and when my husband got home I fell down on the floor and just begged him to kill me because I couldn’t do my job, I couldn’t be a wife, I couldn’t take care of my child, and there was no reason for me to go on. – Jane (interviewee)
The doctors told me it was all in my head, that I really couldn't be having any pain because I was no longer testing positive for a urinary tract infection. I would pray before going to see each new doctor. I'd walk in the office thinking, "Please. I don't care if I have cancer at this point. Just tell me it's something so I can learn to deal with it or take steps to make it better." – Kat (interviewee)
I was diagnosed with vulvodynia when I was 20, but I know I had it much longer than that. My family physician had no idea that vulvodynia was a condition and even went so far as to tell me that the pain was all in my head. – A patient of Dr. Echenberg
When the pain first started, I silently continued intercourse. When the pain was severe, I just had to stop. We would try at times, but I couldn't stand the pain. Eventually, my husband quit going to bed with me. He would stay up at night watching porn and satisfying his needs. We were married only two years when the pain started. – Survey Respondent

 

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Physical Therapy You-Tube Demos

Karen Liberi is a wonderful specialized pelvic floor physical therapist who I met at one of the International Pelvic Pain Society meetings.  She is from Michigan and we had a great dinner with Karen and her husband following a University of Michigan football game.  Karen and I are now slowly figuring out ways to collaborate and to help educate the pelvic pain community in a variety of ways.  Karen has started making some videos that can show our patients what pelvic floor PT is all about.  Following are some of the first examples of Karen's marvelous teaching skills:

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